My son was diagnosed with otosclerosis at age 12 or 13. We noticed probably as early as age 7 or 8 a weird behavior he had. We live next a boat ramp with a decent sized parking lot. In the off season when few cars are there the kids use the parking lot to play in. It was either the first or second autumn we lived in the house, making my son either 7 or 8, when I first noticed what he did when we called for him.
Originally Posted by anewman
I would stand at the end of my driveway and call his name, he would hear his name being called and he would rotate in a circle to look for the source of the sound. When he saw me at the end of the driveway he would come home. If he was in the neighborhood or out of sight and I called for him, he would arrive home and ask "did you call me?' since his friends would tell him "your mom wants you". One day I was talking to my neighbor in her yard, I saw my son down the street and called to him. he looked towards our driveway and I wasn't there, he looked confused. I called to him again, he started to look around until he spotted me in the neighbors yard.
Because his right ear works perfectly, he could hear me when I called him. But, because his left ear is bad ear he, like your daughter, no longer has stereo hearing and can't pinpoint where the sound is coming from. He had a hearing aid, wore it off and on until one day he said "it's a hassle and doesn't really help me". He did OK with his hearing in school, he would ask for a seat on the left side of the classroom, so his bad ear would be toward the wall and his right ear faced into the classroom.
He lost his hearing aid, thank goodness it came with one free replacement. The replacement went swimming one day, it dried out and still worked. He always complained that it sounded "funny", not like how his right ear heard things. At this time my son is now 18 and does not wear a hearing aid. He's become very good at compensating for his hearing loss. The progression of his otosclerosis has been very slow, at one point there was almost no change in his audiogram over a 4 year period. He is due to go have his hearing tested again, it's been 18 months for him. He says he has noticed a change.
I don't have otosclerosis, but I do have a one sided hearing loss. I'm not sure what your daughter's audiogram looks like, but you can see mine in my signature. I lost my hearing suddenly when I had an accident in January 2011. At first I struggled, a lot, to get by day to day. Now, after 18 months, I have adapted quite nicely and most people I meet for the first time have absolutely no idea that I have any hearing issue.
How does your daughter get along? Does she seem to have difficulty in day to day life? I would get a second opinion, preferably as someone else said with a pediatric ENT. Honestly, depending on her audiogram I would not rush to get her a hearing aid just yet. There are so many factors to consider before taking that step. In hindsight, I wish I hadn't laid out the funds for my son's hearing aid. I know she's young so she doesn't really "get it" so to speak. Observe her, especially in social situations to see how she does communicating with other kids. Educate her, give her the knowledge that she has an ear that deosn't work right. To her it's "normal", she knows nothing else at this point. Kids are amazingly adaptable. Good luck!
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Hearing tests are done in a sound proof booth, unfortunately life isn't lived in a sound proof booth...