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Thread: Otosclerosis..... How quickly does it affect people?

  1. Question Otosclerosis..... How quickly does it affect people?

    I am creating this post in the hope that I may help other people in my situation. I have just been diagnosed with Otosclerosis, and my biggest question (amongst other smaller questions) has been; How long will it take to become a significant hearing loss.

    S, I want to know; how long since you first noticed a hearing loss did it take to get your hearing to the point it is at now? I know I (and others) likely won't be affected in the same way, but what would really help me is knowing how other people have been affected by otosclerosis. So, if you have Otosclerosis, please reply and that will really help me and probably others in the same situation that I am in. We could then work out an average and perhaps give people more of an idea of how long it may take. I know that everyone is affected differently, but that is what averages are for.
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  2. #2
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    Hi,

    Please don't take this the wrong way, but what you're asking is unlikely to yield an answer that helps you.

    Otosclerosis is not typically illustrated by your loss: more often hearing losses present with a characteristic 2Khz dip (Carharts Notch). You mentioned in the other thread that you have a mixed low frequency conductive and high frequency sensorineural loss. This might be down to tympanic membrane issue, ossicular chain deformity or could be some form of stapes fixation or just two other underlying coincident conditions.

    Asking for progression of otosclerosis, is unlikely to be beneficial if that's not what you have. I'd suggest that you seek the advice of another professional to get a more positive diagnosis: ideally a specialist in the field.

    As for Otosclerosis, it's dependent on lots of factors, including the condition of the pathology, your genetic predisposition to the disorder, disease and possibly to some extent factors like diet, age and lifestyle. Collective data wouldn't be entirely meaningless, but it would only serve to tell actual victims of the condition whether their progression was average, below or above.
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    Quote Originally Posted by Um bongo View Post
    Hi,

    Please don't take this the wrong way, but what you're asking is unlikely to yield an answer that helps you.

    Otosclerosis is not typically illustrated by your loss: more often hearing losses present with a characteristic 2Khz dip (Carharts Notch). You mentioned in the other thread that you have a mixed low frequency conductive and high frequency sensorineural loss. This might be down to tympanic membrane issue, ossicular chain deformity or could be some form of stapes fixation or just two other underlying coincident conditions.
    No I didn't mention that..... I don't have any sensorineural hearing loss.
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    Right Ear ---- 40 30 40 40 30 10 20 30 40 60
    Left Ear ---- 30 30 30 30 20 10 20 30 30 20

  4. #4
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    Quote Originally Posted by BeckiKinsella View Post
    I am creating this post in the hope that I may help other people in my situation. I have just been diagnosed with Otosclerosis, and my biggest question (amongst other smaller questions) has been; How long will it take to become a significant hearing loss.

    S, I want to know; how long since you first noticed a hearing loss did it take to get your hearing to the point it is at now? I know I (and others) likely won't be affected in the same way, but what would really help me is knowing how other people have been affected by otosclerosis. So, if you have Otosclerosis, please reply and that will really help me and probably others in the same situation that I am in. We could then work out an average and perhaps give people more of an idea of how long it may take. I know that everyone is affected differently, but that is what averages are for.
    The problem with your post is Otosclerosis affects some people faster than others and with others it comes on slowly, so what your going to get is data that basically shows that with some people it came on very suddenly and with others it took years to develop. In the U.S. only .5% of the population develop Otosclerosis during their lifetime, yet post mortem studies have shown that 10% of the people had Otosclerosis like lesions yet never had symptoms of the disease, so for a vast number of people with the disease they are asymptomatic.

    I would take Um Bongo's suggestion of going to someone who specializes in Otosclerosis and get their input into how to best manage your disease if it is indeed Otosclerosis.
    Last edited by seb; 11-04-2013 at 11:29 AM.
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  5. #5

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    I can't help answer your question, I just want to give you a hug and say "There, there. It will be ok." I understand your need to talk with someone who is going through the same thing. Um Bongo is right that it probably won't help your intellectual side to know how other people's disease progressed, but I think it will help your emotional side to know you're not alone.

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    "You mentioned in the other thread that you have a mixed low frequency conductive and high frequency sensorineural loss. This might be down to tympanic membrane issue, ossicular chain deformity or could be some form of stapes fixation or just two other underlying coincident conditions."

    Um bongo;

    I'm the one with the low frequency conductive loss and "possible" sensorineural hearing loss in the high frequencies. Three of the four audiograms I've had done in the last four months showed conductive loss in my "bad" ear; one audiogram showed what my new audiologist believes is a conductive loss in the lower frequencies and a sensorineural loss in the higher frequencies. All four audiograms have shown the Carharts Notch. The ENT I saw is quite convinced that, at least in my "bad" ear, it is otosclerosis. He advised me that otosclerosis can also have a sensorineural component at the same time as a conductive component, and certainly many of the articles I've read suggest the same thing. That said, I'm waiting on a CT scan, and have been referred to two neuro-otologists who will hopefully be able to give me an "official" diagnosis and point me in the right direction as to whether or not there is any treatment available for my condition.

    Becki...Sorry to hijack your thread. I just wanted to address what Um bongo had said

    Kerry
    Last edited by KerBear; 11-05-2013 at 09:52 PM.
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    Quote Originally Posted by KerBear View Post
    "You mentioned in the other thread that you have a mixed low frequency conductive and high frequency sensorineural loss. This might be down to tympanic membrane issue, ossicular chain deformity or could be some form of stapes fixation or just two other underlying coincident conditions."

    Um bongo;

    I'm the one with the low frequency conductive loss and "possible" sensorineural hearing loss in the high frequencies. Three of the four audiograms I've had done in the last four months showed conductive loss in my "bad" ear; one audiogram showed what my new audiologist believes is a conductive loss in the lower frequencies and a sensorineural loss in the higher frequencies. All four audiograms have shown the Carharts Notch. The ENT I saw is quite convinced that, at least in my "bad" ear, it is otosclerosis. He advised me that otosclerosis can also have a sensorineural component at the same time as a conductive component, and certainly many of the articles I've read suggest the same thing. That said, I'm waiting on a CT scan, and have been referred to two neuro-otologists who will hopefully be able to give me an "official" diagnosis and point me in the right direction as to whether or not there is any treatment available for my condition.

    Becki...Sorry to hijack your thread. I just wanted to address what Um bongo had said

    Kerry
    Ah sorry: that's me cross reading threads.

    In any case that's a reverse cookie-bite sensorineural loss, which still is atypical for Otosclerosis.
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    Who has the reverse cookie bite?
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  9. #9
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    Quote Originally Posted by BeckiKinsella View Post
    Who has the reverse cookie bite?
    Yours is, per your audiogram above.
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    Quote Originally Posted by Um bongo View Post
    Yours is, per your audiogram above.

    I thought so. Thanks for confirming. is there anything else that could cause a reverse cookie bite?
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