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Thread: SHL that destroyed my life

  1. Default SHL that destroyed my life

    Hello, world.

    I decided to share my story with only people that can understand me. I'm sorry for bad English or wrong names for medical stuff. I'm not English native speaker but this is the first place where I see more information than "SHL happens".

    It all started 6 months ago, I was still 19 (!!). It was a few days after New Year's Eve, I was getting ready for going back to college. I took a nap during the day, was feeling absolutely good. Then I woke up and heard some weird noises. I didn't know that yet, but it was tinnitus. After a few minutes I found out that I cannot hear the television in my right ear at all! Nothing except that irritating hum. After next few minutes I had dizziness when I was trying to stand up or sit, like in a boat during the strom. I didn't know what was going on so... I started to cry. After 2 hours my parents came back home and took me to the doctor. He didn't know what to do so told me to come back the next day to the ENT doctor. Next morning was terryfing. The dizziness was so strong that I was about to throw up, couldn't walk straight. I was taken to the hospital and got first steroids to my veins. I spend there a week, had MRI (everythng was OK), VNG (result wasn't correct what explained the dizziness) and audiogram (all freq about 70-80 dB). The whole next month I spend in different hospitals where I had all the test done for a few times and I got about 6 steroid injections under my eardrum. I was even at two sessions in hyperbaric chamber, but after second I was vomiting so hard that I lost consciousness (probably because of pressure change). At home I was taking steroid pills for next 2 weeks. What is the result? My audiogram now is:

    freq dB
    125 25
    250 25
    500 35
    1K 40
    2K 60
    4K 70
    8K 75

    So I have my low freq back and.. I gained 15 kg thanks steroids. Nothing more But it's not the hearing loss that is the worst for me.

    I hate tinnitus that I have all day, always. I hate that if I hear something in my right ear it sounds like I would be under the water! It's terrible because I'm tired of people's voice, I'm often tired of my own voice! And what is more- I am hypersensitive for sounds. Going through the city center is enough to cause my headache. Now I sit at home so I don't leave it often but I am going to start my studies again in a few months and I'm afraid of it. Now I sleep for 10 hours a day because I am still tired of all the noise and my tinnitus. How am I supposed to focus on books? How am I supposed to meet new people when I'm losing my mind? That situation is worse than feeling real pain cause there is no pill for it... There is no real treatment. Tomorrow I'm visiting my audiologist for trying first HA (she is aiming at Oticon Alta 2, will see). I hope that HA will help me to go back to life and fight that torture.

    Anyone had a similar boucket of ailments at the same time? Now I feel like an alien because noone around can understand what I am going through...

  2. #2
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    Default

    You had what is referred to as Meniere's Disease. It isn't an actual disease but a collection of symptoms. You got the best, prompt treatment. You loss listed isn't bad but Meniere's can have its own side effects. Word Recognition Scores are very important here. They are an indicator of a problem between the ear and brain.

    I had Meniere's 3 yrs ago next August. I didn't get a prompt a treatment as you. My WRS is low. But, the strong tinnitus I had is now moribund. Hopefully, time will eliminate or reduce it. Tinnitus is also helped by hearing aids for may who report much reduced tinnitus.

    My Meniere's lasted about 3 months with periodic bouts of nausea, vertigo etc. Some don't get rid of the attacks. You seem to have done so. Count that a blessing.
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  3. Default

    At the beginning doctors suspected Meniere's Disease but then it was excluded by too deep hearing loss. Moreover, my dizziness disappeard completely after 3 weeks of taking medicines. I haven't got them anymore since then. The VNG and hearing test result showed the inner ear damage what caused dizziness and all the stuff. But what is the most interesting, MRI result said that my hearing nerve is ok, but a few times a day I've got something like electric impulses (?) in my head.. They appear when I am tired (or during waking up) and then I swallow or hear sudden loud noise... Very weird, the ENT doctor doesn't know what I am talking about.

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    Meniere's, as I said, is more a collection of symptoms than an identifiable disease. You might want to get a referral to a neurologist. Your WRS scores are very telling at this point. Do you know what they are?
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  5. #5

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    dr kenni giving medical advice over the internet.. Not even funny, just give him one of your hugs

  6. Default

    Quote Originally Posted by Doc Jake View Post
    dr kenni giving medical advice over the internet.. Not even funny, just give him one of your hugs
    No funnier than some idiot who puts "Doc" in front of his name even though he isn't one. Why did they let you back in here anyway? Your a blight on this forum.
    The Babbling Blue Crab

    Freq - 250 - 500 - 750 - 1k - 2k - 3k - 4k - 6k - 8k
    -- R -- 20 -- 30 -- 30 - 40 - 45 - 50 - 55 - 55 - 60
    -- L -- 20 -- 30 -- 55 - 60 - 55 - 50 - 55 - 70 - 60

    SRT R 35 L 45
    WR R 75/88% L 75/76%

    Siemens Pure 5bx with EasyTek
    Wearing hearing aids since Sept. 2015

  7. #7

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    Not being a doctor I would not know what is wrong but I can say my hearing is worse ( will get around to posting at some point) I have had tinnitus for as long as I can remember and I think that it may be too quiet if it ever went away. If you are fitted with H/A there is a chance that the tinnitus will go away. Do not waste your time and energy on the fake pills on the internet they do not work. If you hate the sound of your voice it may just be a temporary issue that will change once your brain adjusts to it. Loss of hearing is not a death sentence. As for The tinnitus hopefully, the hearing aids will help or you will get used to it

  8. #8

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    Quote Originally Posted by BlueCrab View Post
    No funnier than some idiot who puts "Doc" in front of his name even though he isn't one. Why did they let you back in here anyway? Your a blight on this forum.

    Do a little research ass hat.. The daft dodger isn't worth correcting especially when he's off the wagon. But if kenni know better then real doctors who have seen him so be it..

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    Go ahead "Doc" correct me if you can and, while you are at it, identify that medical advice I gave that you claim.

    You are back to name calling when what you are gets exposed to people who might accidentally take you seriously.

    Back under your bridge, Jakey the troll. And try to find some better scatological terms. Asshat? That's was a laughable term by 4th grade. And really, asshat? I guess that would be a form of underwear. Why your obsession with skivies?
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  10. #10

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    What we have is a poster who recently lost hearing at a young age and thinks it is the end of the world.

    Can we all just grow up and help this poster and save the personal attacks for the Phonak vs Primax vs Oticon threads where they belong?

    Yeah I know it was just a suggestion.

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