My hearing loss...

[Aquakneek]

I thought I would describe my hearing loss and see if anyone else has something similar^^. I have enlarged endolymphatic sacs in both ears. Its genetic and can cause sudden hearing loss that does not come back (usually). I dont know if my hearing loss has been present since birth or if it occurred later, but it was discovered when I was three. The enlarged sacs can also cause balance problems and slight fluctuations in hearing and balance from day to day. Some days my balance is pretty good, others not so much. I get some tinnitus but only for minutes at a time and usually when my hearing is fluctuating. They do not know why this causes hearing loss, only that it does. It can do it once then never again, or several times in ones lifetime. Supposedly its more likely to lose hearing after being hit in the head, but it depends. Anyone else have this or something similar? Or know something about it?